Category Archives: Guest Posts

This Is The Song (That Never Ends)

Once upon a time there was a disillusioned grad student, screen name: scarsarestories.  Blocked from carrying out a government scholarship funded project on children and psychotropic medications by a right-wing educational institution, she decided to start a blog.  She had never wanted to write for an “academic <cough> elitist <cough> <ahem!> audience” before, anyhow, she wanted her words and opinions to reach a much wider spectrum of people – that of anyone, anywhere, that could easily access her words.  It was a dream come true when I started seeing page views slowly rise from ten per day to one hundred and beyond.  I certainly have not made a killing (or a living !) *lol*  ) as a blogger, though I hope that eventually I can jump off this platform into a career as a writer.  But I’ve made some things that are far more valuable than dollar bills.

I’ve made friends.  I encourage you to “friend me” on facebook to interact, because that is just how I met a couple of Ontario readers who I now consider soul siblings: the fantastic Sarafin, author and illustrator of Asylum Squad, a web comic (soon to be in print!  ), and “Ma Magie”, Richard-Yves, also a wonderful writer, of the lyrical poem that shares its title with this post and countless other gems, some of which you’ll find on his blog and elsewhere on the web.  I do not make friends all that easily, but I’ve made two, and I did not ask for or anticipate them, but they arrived and I knew I must be doing something right.  These two are now good friends, and get to see a lot more of each other than me due to geographical realities <jealous?  me?!  :think:  >.

I guess what I’m trying to get out of my trap is that a tiny little community has arisen among these archived writings – two years of my life, expressed whenever I could, really, express myself, and a new brother and a new sister sprung from the annals, and I love them more than many ——.

Rick wrote these beautiful “lyrics”, the sum and fabulous poem is as great as its parts.  The song is the metaphor.  I am reminded of this Bright Eyes tune:

, but it pales in comparison to Rick’s rhymes.  I leave you with, “…The Song That Never Ends”, lyrics by Richard-Yves Sitoski, vocals, etc. by (the awesome, as well) Jake Chegahno, photos added by yours truly. (click for youtube music video).

Here are those fabulous lyrics, and a fabulous poem: :siul:

HERE IS THE SONG THAT NEVER ENDS…

This is for the ones who never learned to wait,

And this is for the ones who formerly were great.

And this is for the ones who just ran out of luck,

And this is for the ones who just don’t give a fuck.

And this is for the gravel you picked out of your wound,

And this is for the decade you spent locked in your room.

And this is for the nipple that burns beneath your tongue,

And this is for the majesty you had when you were young.

And this is for the sparrow singing in the rafters,

And this is for the bomb and the silence that came after.

And this is for the crimes committed by your god,

And this is for the children spoiled by the rod.

And this is for the morning and the promise that you gave her,

And this is for the evening when you knew you would betray her.

And this is for the side effects that are worse than the disease

When the pills you take to kill it bring you to your knees.

 

And this is for the book that’s full of wisdom till you read it,

And this is for the wolf that’s full of kindness till you feed it.

And this is for my sister who crawled out of the wreckage,

And this is for my brother who never got the message.

And this is for the grownups who like to play with dolls,

And this is for the clerks who liberate the malls.

And this is for the gambler who knows he’ll never win,

And this is for the regiment and all their next of kin.

And this is for your third eye rolling in its socket,

And this is for the soul that fell out of your pocket.

And this is for the sow’s ear you made out of a purse,

And this is for the tricycle, the ambulance, the hearse.

And this is for the bricklayer whose bricks contain no straw,

And this is for the boxer with crystal for a jaw.

And this is for the martyrs whose heads are served on platters,

And this is for the Dormice, the March Hares and the Hatters.

And this is for the radical defeated by tradition,

And this is for the moderate lost in the transition.

And this is for the shackles and the chemical restraints

And all the clothes you soil and all the air you taint.

And this is for the captain who left you on the boat,

And this is for the chill that creeps beneath your coat.

And this is for the angels who’ve never heard of sin

And give away to devils their alabaster skin.

And this is for the vinegar that happened to your wine,

And this is for the tapeworm that happened to your swine.

And this is for the id that rises from the seas,

And this is for the ego that cowers in the trees.

And this is for the cross from which your son descended,

And this is for the mantle and the shroud his mother mended.

And this is for the silt that used to be the harbour,

And this is for the leeches and the razors and the barber.

And this is for the moth that made it through the flame,

And this is for the freedom of abandoning your name.

And this is for the magnet that’s buried in your breast

That draws you to the iron of an imaginary west.

 

And this is for the lover who rose and walked away

When hearts became a game she got too tired to play.

And this is for the artist who pissed upon her canvas,

And this is for the boss who pissed upon your answers.

And this is for the mother who took to drugs and drink,

And this is for the son who took to wearing pink.

And this is for the women the detectives file in boxes,

And this is for the chickens guarded by the foxes.

And this is for the trees because they grow on money,

And this is for the flies because they die in honey.

And this is for your joy at playing with the heads

Of men who think they own you when they strap you to their beds.

And this is for the drug they slipped into your liquor,

And this is for the spine that was broken by a feather.

And this is for the bandage and the blister and the blood,

And this is for the fight before the flight before the flood.

And this is for your daughter playing in the sewer,

And this is for your mother who died before you knew her.

And this is for moonlight that spills across the floor,

And this is for the luggage that night drops at your door.

And this is for the brine on Adam’s dying lips

The day he fell in Eve and drowned between her hips.

And this is for your body on which you carved a picture,

And this is for the Braille in which you wrote the scripture.

And this is for the song that ends as it began,

Like the face of Ozymandias weathering to sand.

And this is for the song that begins the way it ends,

Like the mortal enemy who used to be your friend.”

 

Words by Richard-Yves Sitoski, Photographs by scarsarestories

“The Little Girl Crying” – Guest Post by Catherine333

I have a new favourite blog – well, to sit alongside my other favourites!

“the naked truth: me, my mental illness, and i” is incredible if you, like I, enjoy hearing voices that echo not my own per say, but what I feel like inside.  Catherine333′s blog is courageously raw and uncut, and I can relate to the words that communicate the feelings of this fellow survivor, blogger, and beautiful artist on a special, deep level.  Her art reminds me of our amazing ability to weave pain into beauty. This post struck a particularly close chord for me, and she asked if I would share it here – what an honour :kisss .  Without further ado,

“The Little Girl Crying”.

“Lately, I have been relapsing. But mostly, issues have been resurfacing in a big way. Issues from my past which I thought I had put behind me. Now, I don’t feel like going into a description of my childhood and life. We all have our stories some sadder than others. I have no idea where my story lies on the grand scale of sad, probably in the not so sad section, who knows.  All I know is that it has deeply affected me in ways that surprise me even now.

When I think about my past, there is this little voice, the voice of the little girl I once was. This voice keeps wondering…

Why was I not worthy of being loved by you?

Why was I not worthy of being protected?

What was so wrong with me that it was so easy to sacrifice me?

What was so wrong with me that it made it okay to treat me that way? Or to let that person treat me that way?

Was I not pretty enough? Smart enough? Nice enough? Sweet enough?

Why wasn’t I precious to you?

Why did you choose to let that person hurt me?

And a million other questions for which I won’t have answers…

As an adult, I know that there was nothing wrong with me. I know that it was not my fault. I know that the blame, the guilt, the shame lies elsewhere. I was a child. I was and am precious. I should have been loved, cherished and protected. This is not my fault. I have studied about this, I have read about this, I have been in therapy. My rational adult mind knows this. And yet, there is this little girl in my mind who wonders and cries and bleeds and suffers…

I think about children, people, who were abused, abused sexually and/or physically and I wonder what their inner child sounds like. I was not put through the horrors they were put through and yet I still carry guilt and shame and blame that is not mine. I can’t imagine the weight of what they carry around unjustly. It must be terrible.

What I do know is that I keep reminding myself what the adult me knows. There was nothing wrong with me. I was and am precious. Those who did not see that, they were wrong. And yet, on mornings like this one, inside of me, there is a little girl crying, wishing she had been protected and cherished and chosen.

I hope one day she will believe what the adult me is trying to let her know…”

Editor’s note: Before reading this, I had never thought of slipping into a depression as akin to “relapsing”.  When I experience depression, I tend to “get depressed about being depressed” – much guilt and shame comes with not being able to peel myself off the couch when I’m in the throse of a saddness that gets stuck to me, and in doing so, gets me stuck like a wheel in thick, cold snow.  I think the guilt and shame I would feel if I were to start using the hard drugs I used to self-medicate in my late teens and early twenties, again, would be very similar.  I find it quite a bit more eloquent than my description, and I look forward to Catherine’s frequent, shameless, beautiful words in her future posts. I hope you do too!

scars xo

Traveling While Bipolar (Guest Post #2)

Bipolar Disorder Sufferers – Eight Things to Do To Prepare for Travel.  Plus, build your own Tool Box!

(by Shah Wharton)

As many of you know by now, I have bipolar disorder and travel worries are still a young issue with me. I used to put it down to claustrophobia however, not bipolar disorder. I learned only recently that it’s very much to with being bipolar and not a random phobia.

In fact, did you know that travel is just one of many areas of life which can be severely affected by bipolar disorder?

Travelling can be a trigger for people with bipolar disorder. Everyone gets excited when they’re going on holiday, right? Well, it’s this type of over-stimulation which can affect us detrimentally. Also, the schedule itself can be a stimulant – keeping up with the arrangements can stress us out.
Time changes also add chaos as they disrupt our sleep patterns and we are slaves to them – Changes in sleep patterns due to time changes can affect bipolar disorder. Also, our medications must be taken at the right time every day and I don’t know about anyone else, but I take mine at night about an hour or so before bed, because they can knock really me out. They don’t always knock me out, which is weird, but they can. I don’t want to be out enjoying an evening with my husband to find I’m falling asleep over my food!
Other travel-related stress can affect the disorder.  Miami Dade Police Department confirmed that Rigoberto Alpizar, the man who was shot and killed by federal air marshals 2005 at Miami International Airport was possibly suffering from manic depression when he said he had a bomb whilst running off the airplane with a ruck-sac on his back.

Dr. S. Nassir Ghaemi, director of the Bipolar Disorder Research Program at Emory University in Atlanta, said,“Bipolar sufferers also tend to be heavily affected by changes in sleeping patterns and time zones. In fact, there have been notable situations where ambulances met airplanes on the tarmac to assist a person who was in a manic state…If both risk factors occurred — he [Alpizar] had not taken his medications on his trip to Ecuador and he was sleep-deprived due to a long international flight — it would not be uncommon for a manic episode to be triggered.” Can’t say I’ve ever gone that far, but if he felt the intense claustrophobia that I feel sometimes then I can see why he said such a shocking thing – he may well have desperately needed to get out of the kind of stifling crowd that forms on a plane while everyone is boarding or preparing to leave. In a state of panic, he probably couldn’t breathe at the time. Struggling through a crowd while you feel all the oxygen leave your lungs would be too much for most people, and it clearly was for Alpizar, so he said the one thing which would disperse a crowd instantly. For these reasons alone, bipolar sufferers should consider carefully planning their trip before leaving home in order to help alleviate some of this destructive stress.
Bipolar Disorder Sufferers – Eight Things to Do To Prepare for Travel.Plus, build your own Tool Box!

New Day Dawning (photo by scarsarestories)

1.      Speak with your medical support team about your travel plans beforehand. Tell them about any issues you think you might have, like claustrophobia, that could present as a trigger for a attack from stress induced mania. Perhaps ask about getting a short prescription to help you cope with the travel element of your holiday, such as diazepam. It could just calm your nerves enough to remain rational.

2.      Always ensure you take with you enough of your normal medications. If at all possible, take a few days extra in case you lose some or require more for whatever reason. I get mine in small tablet doses so that if I’m more stressed for a few days I up my dosages in 25ml increments (this will change markedly according to what medications you take). I prefer it this way, because it also means I get to lower it as and when I feel a sustained level of good mental health. For example, for some years my mental health has improved a lot, so I gradually went from 400ml a day, to 225ml a day. Recently, because we moved to Dubai and I had two failed attempts of IVF I increased it to 275ml. If I balance out for a few months, I’ll bring it down slowly again. I enjoy the control I have over my medications. I believe it actually aids my recovery.

3.      As per the Transportation Security Administration, all medications are allowed through the security checkpoint once they have been screened, so put them in your hand luggage. If someone losing your case, that’s stress enough, don’t add to that by having them lose your meds too. You can’t just pick this stuff up in Tesco!

4.      Review What to Know Before You Go , or a similar service depending on your country of primary residence, available through the Transportation Security Administration (or equivalent institution depending on your country of primary residence!). This information, such as lists of prohibited items and expected wait times, can help you feel more secure in knowing what to expect. This site also includes valuable information for those with disabilities.
5.      It’s not always possible, but If it is do try to travel with someone you trust. They will be able help you remember your medications, share the stress of travelling and help you remain calm. If that’s not possible there are organizations that, for a fee, provide professional companion travellers, such as Acccessible Journeys .

6.      Don’t  rush about doing things at the last minute – take your time and plan. Get to the airport as early as is allowed for early book in. Sit down somewhere with a coffee and a good book, or whatever else you find restful and comforting. Perhaps you prefer a shop, food, your iPod?

7.      You might feel safer or more comfortable telling a steward about any issues. Flight crews are aware of any air marshals among the passengers, and will be able to tell them of your condition.8.      Last but certainly not least is a Tool Box/Bag. I made mine up because after three panic attacks on a plane, in a row, returning from to Portugal last year, I decided that I had to take things in hands! I developed “my tool box bag” based on my belief that if you ‘Look after your senses, they’ll look after you!’ I have found that panic or fear or stress all stem in some way from the manipulation of the senses. So I decided to manipulate them first – before my bipolar does – that way I’m in control ;)

Here it is – You can change things in your tool box which are more personal to you – but when selecting thing, think  of how they affect your senses.

Something to listen to. I bought a hypnosis down load and put it on my iPod. I used the hypnosis recording two or three times before I fly, or use anything which is usually very crowded – like London Underground. Then I get it ready to switch on to calm me down when I’m boarding and getting seated on the plane, or entering the underground. My recording is specifically about phobias and irrational fears. You can get them on all things, cheaply all over the web.

Something to smell. I find smells can calm me down and/or set up to  panic. If  someone close-by smells sweaty or unclean that could set me off. Now I have a tool to combat it. I purchased a roll on oil which has lavender and bergamot in it. It’s my fresh air when I feel stifled.

Something to taste. I choose fruit flavoured boiled sweets. Might sound weird, but I can feel sick or nauseous if stressed, and I find a hit of sugar helps. Also, you have to suck the sweet, which give you something to focus on – like its taste, how small it is getting, and the texture of it on your tongue.

Something to drink. Water – Everyone should travel with a bottle of water anyway. Plane travel especially is very dehydrating, and if you’re prone to panic, you need to hydrate often and stay away from caffeine (in coffee and pop and tea) and alcohol of course. Although, I once treated myself to a shot of Jack Daniels, before landing, but it wouldn’t have had time to reach my system till after I’d left the plane.  ;)

Something to cool me down. I choose a hand held fan – mine is very loud though. Try to get one less annoying than mine! I only use it if a feel especially breathless or stifling hot. It helps! Wet wipes which smell of lemons are also a less annoyingly noisy option. ;)

Something to warm me up. However much I loathe being too hot, I also loathe being cold. I take socks and a cardigan or light coat. Or a jumper/sweater. Some airlines offer blankets, which is nice too.

Something to calm me down. Although my hypnotherapy down load helps, I still choose to take some calming pills before I board – either natural (mine are natural and from the web – I bought loads after Portugal) or get something with a bit more kick from the doctor.  I prefer to remain as close to ‘normal’ as possible though. Especially if I’m travelling alone.  According to what you’re taking take them appropriately. Don’t overdo it! I take three an hour before boarding and I’m fine.

Something to read/do. First and foremost, something I take everywhere: My marvellous Kindle, which is cram packed full with books to read. It totally works to occupy me if I’m engaged within those lovely digital pages BEFORE I board, because then I can usually get right back into it on the plane. It really helps me get through that awful stage where everyone around me fusses and fights over luggage locker space, getting to their seats and whatever else people do (why do they have to take so long to sit down – aarrgh?). This is my worse time and the time I’m most likely to panic.  My panic has nothing to do with flying by the way.  My husband flies for Emirates. I’m fine with all that, it’s people and crowds that stop my breath?
Right well, I hope that has been of some use to some of my readers?  Do please let me know. And by all means add to this list in the comments boxes – what are your tricks to stress free travel?  WordsinSync’s blog can be accessed by clicking on this link!

Editor’s (scarsarestories) Note: I would love to know as well before I board my next plane!

Edge of Madness by Catherine Gourd (Guest Post #1)

Edge of Madness by Catherine Gourd

“Edge of Madness” – Catherine Gourd

Edge of madness

Flying demons

Standing breathless

Insanity summons

Harpies screeching

Falls of darkness

My mind reeling

Painful caress

Edge of madness

Am I falling?

More or less

Screaming lightning…

Am I still sane?

————————————————————————————————

When I close my eyes, the words, the ideas come. Like rushing waterfalls, or raging gusts of winds, they come, thunderous, and invade my mind. Yet, when I open the computer, they fly away like capricious birds looking for kinder shores to land on. They fly around in my head, loud wings clapping but just out of reach. I try to snatch them from their sky, to pry them from my mind and throw them on the page and yet they elude me. Silly words, silly ideas, wanting to be heard but too afraid to commit. As such, I sit here with my mind a loud thunder of thoughts and yet I find myself with little to say that makes any kind of sense. I have too many words and ideas to say anything. You may think this paradoxical, but isn’t it true that most truths in life are just that?

It is the nature of my existence to be a paradox. I am a being at war with itself. I am a truth that cannot help contradict itself. I am me and I live on the edge of madness…  Click Here to Visit Catherine’s Blog!